SPECIAL NEEDS PARENTING: What I Wish I knew

When my child was first diagnosed with Osteogenesis Imperfecta, I felt everything at once — fear, confusion, determination, and a longing to understand what our new world would look like.
 If you’re listening and walking this road too… I see you. 💙

In this emotional and hope-filled episode of The Marvellous-U Podcast, I open up about the early days of diagnosis — the overwhelm, the appointments, the grief, the guilt, the isolation — and the truth that so many parents experience but rarely say out loud.

I share the things I wish I knew at the beginning of our journey:
✨ You are not alone — there is a community for you.
✨ You are enough — you don’t need all the answers on day one.
✨ Celebrate every milestone, no matter how small.
✨ Advocacy matters — your voice is powerful.
✨ Self-care isn’t selfish — it keeps you going.

This episode is a reminder that there is beauty in redefining “normal,” in finding unexpected joy, and in learning from your child’s strength, resilience, and love.

You are doing better than you think. Your love is enough. Your presence is powerful.
 If you want to go deeper, my book Raising a Glass Baby offers more support from one parent to another.

🌸 I’d love to hear your story too — connect with me on social media so we can lift each other up.
 And remember: whatever stage you’re in, just breathe, love, and know that you and your child are both marvellous. 💖

#TheMarvellousUPodcast #SpecialNeedsParenting #OsteogenesisImperfecta #ParentingJourney #CarerLife #SendParenting #Resilience #MotherhoodUnfiltered #HopeAndHealing #MarvellousU

Chapters

• 1:04 The early days
• 6:56 The diagnosis
• 11:46 What I wish I knew
• 20:11 Lessons in learnt
• 23:19 Encouragement
• 26:24 Share your story